We occasionally get letters or comments from parents that have seen improvements in health with REID. To help provide hope to so many still in the trenches, I’ve decided to make more of an effort to share some these comments (with their permission, of course). Many of us don’t have it all figured out, but we cling to the hope and words of progress. Everyone’s journey is different, diet changes may not reap huge changes for all, but it is absolutely helping some. Like this family, glutamate and the REID diet have been a huge piece to our puzzle. Thank you for giving us hope…
“My son has PANS and was spiraling. He couldn’t eat, sleep, bathe himself, dress himself, Severe OCD, self harming etc. Screaming and raging all day and all night. Steroids were the only thing that touched it after a slew of supps and medications. After the steroid benefits tapered we were still left with lots of problems, but he was able to eat and not scream as much all day. After a ton of research I stumbled on this diet. We went really hard on it for about 4 months and saw dramatic improvements. It was sooooo hard and i literally was cooking and cleaning morning till late at night. We couldn’t go anywhere or do anything because of all the food constraints. But we knew it was helping. I’ve taken the basic principles but have modified it to fit our lives now. Supplements have played a huge part in our healing journey, but they couldn’t do their job with the level of inflammation and high glutamate that was going on. I have also learned through our 4yr journey that supps are very tricky and can do allot more harm then good if you don’t know what you are doing. We are in a good place right now. I don’t know if it will last, but I’m happy to be able to enjoy my child right now. Any moments of joy and good times is worth it even if it’s temporary. We have loosened up and still do green smoothies and avoid the main no no’s. But we bend here and there on some things. We’ve been doing it for about 7/8 months now I think?”
-Anonymous REID Mom